Progeria and Its Impact: Remembering Sammy Basso, the Longest-Living Survivor

Understanding Progeria: A Rare Genetic Disease

Progeria, a rare genetic disease, causes rapid aging starting in the first two years of a child’s life. This condition is medically known as Hutchinson–Gilford syndrome (HGPS). Individuals affected exhibit symptoms that make them appear significantly older than their actual age.

Who Was Sammy Basso?

Sammy Basso was diagnosed with progeria at the age of two, after his birth in Italy in 1995. He became famous for his story, which was documented in a National Geographic film titled Sammy's Journey. His parents founded the Italian Progeria Association to raise awareness for this rare disease.

Challenges of Living with Progeria

• Health Complications: The condition leads to serious health problems and a reduced quality of life.
• Patients typically have a life expectancy of only 13.5 years without treatment.
• Statistics show progeria affects one in every eight million births globally.

Treatment and Support

Currently, there is no cure for progeria, but treatments like physical therapy and medications such as Lonafarnib exist to manage symptoms and improve life quality.

Remembering Sammy Basso

Sammy's story has inspired many globally, highlighting the need for continued research and awareness of progeria. He will be remembered for his strength and advocacy for others suffering from this rare genetic condition.